Sydney was nonverbal from age 2 to about 4 1/2. It was devastating for us not to hear her say our names or say hello. She stopped responding to her name and wouldn’t make eye contact. I lost a lot of friends after her diagnosis. Syd would be the only one not invited to a party. And pretty soon Harrison stopped getting invites because they thought I would bring Sydney. When Sydney was older I gave her a party with the kids from her summer camp. Most of those children had never been to a birthday party either. They all brought their siblings and we all felt safe. No judgements allowed.❤️
One of the saddest things was not knowing when Sydney was sick and that she couldn’t tell me. So, I showed her how to use a band-aid and to put it on her body where it was hurting. I wasn’t sure if she understood me. But after a few days I noticed she had a band-aid on her bottom! My mother’s intuition kicked in and she was constipated.😜 We felt good that she made the connection. But when she began putting band aids on her head, pulling out her hair and hitting her head with her hands. I knew that another road was being added to our journey which would lead to epilepsy.