I realized that I never told Syd that she has autism. It wasn’t that I was ashamed or didn’t want her to identify with her autism. I didn’t know if she would understand. Over time when Syd has struggled at school, with social situations. I began to bring up the A word. Syd loves her … More I Forgot To Tell Sydney She Has Autism
I wish it was that easy to throw a flag on the field after a bad call when I’m navigating autism. There are no rules. I think we make them up as we go. Each family has their own set of rules so don’t go trying to enforce our rules on another family. It doesn’t … More I’m Throwing A Flag On The Field
When Sydney was younger she called her seizures “the monsters”. She would tell me the monsters were coming before the actual seizure happened. Sydney’s seizure occurred at night and I thought she was having bad nightmares at first. After many videos and journaling her doctor diagnosed her with epilepsy. Autism has us on high alert … More She Called Them The Monsters
I didn’t give up I just took a time out. I still wanted Syd’s doctor to tell me what to do, but I had to make a decision. There will always be appointments, autism, seizures and decisions to make. Will I always get it right? I’m not sure but I won’t stop praying and taking … More Time To Put My Cape Back On Today
I think it was an episode of Greys Anatomy I was watching. The patient could hear and see everything that was going on. But couldn’t speak, and couldn’t move. Seeing the distress in their eyes made me empathize with how they felt. I was in an autism coma for many years. I was walking through … More Autism Coma
This past weekend we experienced some major milestones in Copher’s Community. We made it through a long weekend without any meltdowns. As I am typing this now, Sydney is crying herself to sleep. Sydney didn’t need her visual schedule. I even had a chance to go to the salon and have a few hours … More A Night of Seizures and Sleep Paralysis
