Being a parent is a full-time job. Being a parent of a special needs child requires overtime. Like I have said before I was never in denial about her diagnosis. I was just overwhelmed and protective about who I shared our journey with. Now that I am blogging and sharing my soul it is easier.
I know that people are tired of hearing about autism and Sydney. They may even dread April when it is time for Sydney’s Super Squad and the Autism Walk. My feelings won’t be hurt, they can scroll past my posts.
As a special needs mom here are some things that I hate to admit. Maybe other parents can also relate.
- I can’t just get a babysitter. It sounds very easy to do. But it takes more planning on my part. I am thinking outside of my family. They do so much for us already.
- If you invite us over we just might come. So please try to hide that surprised look “oh they really came”. We never stay long, but if you truly didn’t want to invite us, than please don’t.
- I want to share things but I have feeling people don’t always want to hear about my lack of sleep, IEP meetings and doctor visits. That can be a lonely feeling sometimes.
- When Sydney is older will be accepted as an adult? That scares me.
- I feel guilty for taking time for myself. I feel guilty that I can’t schedule more sessions for Sydney that may help her, but I can’t take the time off from work on a regular basis.
I can’t play the “what if” game. I have to live each day to the fullest. But I think parents need to know that it is normal to feel this way. It means we are human.