Monday’s are challenging for us in the morning. No matter how much I prep the night before something happens on a Monday morning that disturbs our routine. This past Monday was no exception. I knew I had to visit the nurse at the high school to review Syd’s new seizure action plan and be at … More Don’t Tell Me Syd Hijacked The School Bus
I realized that I never told Syd that she has autism. It wasn’t that I was ashamed or didn’t want her to identify with her autism. I didn’t know if she would understand. Over time when Syd has struggled at school, with social situations. I began to bring up the A word. Syd loves her … More I Forgot To Tell Sydney She Has Autism
I wish it was that easy to throw a flag on the field after a bad call when I’m navigating autism. There are no rules. I think we make them up as we go. Each family has their own set of rules so don’t go trying to enforce our rules on another family. It doesn’t … More I’m Throwing A Flag On The Field
I called on Jesus so much on Wednesday. I’m sure He doesn’t want to hear from me again until Thanksgiving! Wednesday our family accomplished major victories. You can never plan enough for autism and I learned that sometimes all of my planning makes things worse. I thought back to last year when Sydney and I … More Jesus Take The Ferris Wheel And The Waffle Fries
People have always welcomed my family to swim at their home. I admit I declined many invites and finally people stopped asking us. It was my own fault. I wasn’t sure how Syd would behave, if she would kick and scream when it was time to leave, or would she share the pool toys? Also, … More There’s No Drowning On Summer Vacation
I always wondered what Sydney was doing at lunch and recess. Did she have friends to play with? Did she play by herself? Did she wander around by herself? How did that make her feel? Yesterday I had recess duty and I complained like I was a kid, because it was hot. In the end … More When There’s No Room On The Buddy Bench
When I heard Kodi’s mom say that music saved his life I began to cry. I thought to myself what will save Sydney’s life? Will it be cheerleading, track, her love of flowers or drama? By now we have all seen or heard about the talented Kodi Lee, a 22 year old man living with … More Music Saved His Life
IEP etiquette is to bring bagels, muffins or snacks to the IEP team. This is like a peace offering showing you are all on the same side. Food at an IEP meeting reminds me of The Last Supper. Food is the last thing on my mind. I wish I could have asked Sydney’s IEP team … More Jesus Is Better Than Bagels
I wonder if me sharing our autism journey made a difference. Is someone now aware of the signs of autism? Does someone understand the need for sensory friendly events? Will someone smile at a parent trying to comfort their child during a meltdown? Will you embrace the child with a disability that is in your … More Have I Taught You Anything?
I may have played the race card once or twice. It wasn’t what you think. I didn’t use my blackness to get admitted into school, ask for special treatment or to scream racism. It was when I was with friends and they wanted to rent a plane for skydiving and I had to remind them … More Playing The Autism Card
A Woman's Work - Brooke Basically Blogging 