Last night Syd didn’t go to bed until midnight. When I asked her why she couldn’t sleep she told me she saw dead people. #nottodaysatan Then I asked her were they zombie dead people? Stranger dead people? Or dead people that we know? She relied, “It’s our dead family.” I replied, “Tell them I said … More Syd, Dead People Can Visit You Anytime!
Monday’s are challenging for us in the morning. No matter how much I prep the night before something happens on a Monday morning that disturbs our routine. This past Monday was no exception. I knew I had to visit the nurse at the high school to review Syd’s new seizure action plan and be at … More Don’t Tell Me Syd Hijacked The School Bus
I didn’t realize there was so much controversy over using the blue pumpkin. I think many of the comments against children with autism using the blue pumpkin are from parents that have been in the autism game for a long time. When I think about us at the beginning of our autism journey I would … More Blue Pumpkins
I realized that I never told Syd that she has autism. It wasn’t that I was ashamed or didn’t want her to identify with her autism. I didn’t know if she would understand. Over time when Syd has struggled at school, with social situations. I began to bring up the A word. Syd loves her … More I Forgot To Tell Sydney She Has Autism
I wish it was that easy to throw a flag on the field after a bad call when I’m navigating autism. There are no rules. I think we make them up as we go. Each family has their own set of rules so don’t go trying to enforce our rules on another family. It doesn’t … More I’m Throwing A Flag On The Field
I called on Jesus so much on Wednesday. I’m sure He doesn’t want to hear from me again until Thanksgiving! Wednesday our family accomplished major victories. You can never plan enough for autism and I learned that sometimes all of my planning makes things worse. I thought back to last year when Sydney and I … More Jesus Take The Ferris Wheel And The Waffle Fries
This is Syd, all smiles when Harrison and I picked her up early from summer school on Thursday. It’s the smile on her face that I love and even more the excitement and hugs we received when we picked her up. This is perfect autism. Yesterday I knew I was pushing it, the heat index … More Damn You Mary Poppins